Incorporating the Patient and Family Voice in Patient-Centered Medical Home Improvement Efforts

August 8, 2014   |  Tags: Blog   |  Tags: QI , Patient Partners , Pediatrics
Colleen Reuland, OPIP

The Oregon Pediatric Improvement Partnership (OPIP), a partner of the Patient-Centered Primary Care Institute, is an organization committed to public/private partnerships that build health and improve outcomes for children and youth. One strategy within the OPIP mission is “incorporating the patient and family voice into quality efforts." We feel that if we are going to improve care for children, youth and their families, we need to assure their voices are thoughtfully heard and engaged.

As an organization we have demonstrated commitment to this mission through:

  • Ensuring that entities that represent children and youth are on our steering and advisory committees
  • Having parents serve as key note speakers at in-person trainings we conduct
  • For all projects, attempt to build in evaluation data that are collected from patients and families themselves

An invaluable and collaborative partner in identifying families to work with us and to serve on our committees has been the Oregon Center for Children and Youth with Special Health Care Needs (OCCYSHN). More recently, as part of a Medical Home Learning Collaborative, OPIP has been training and coaching practices on how they can genuinely partner with and engage their patients as partners in quality improvement efforts.

Patient involvement in QI has been shown to be a predictive factor in sustained transformation. Wanting to practice what we preach, OPIP has since hired parents to serve on our steering and project committees. Alicia Delashmutt is one of our paid parent partners. Ms. Delashmutt has brought a unique and invaluable perspective. Her critical review of our improvement projects through the lens of parents and parents of children who experience special health care needs has improved the quality of our work.

We will never go back – we are committed to ensuring that there is always a seat for parents at our shared improvement table. We challenge you to do so as well!


Hear from Alicia about how you can >>>


To access resources to support practices, please see the attachment.



Colleen Reuland, MS, is the Director of OPIP